tag:blogger.com,1999:blog-8494033803992048922.post3544600209704462493..comments2013-05-10T10:50:56.354-07:00Comments on And Then There Were 3: Time flies yet again…Amanda Byersdorferhttp://www.blogger.com/profile/12287497835239634612noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8494033803992048922.post-68494193681107085212013-05-10T10:50:56.354-07:002013-05-10T10:50:56.354-07:00I am reaching out trying to find parents who have ...I am reaching out trying to find parents who have had children with campomelic dysplasia - is this what you son has? If so would you please be able to communicate with me - share some of your advise/wisdom on this. My husband and I just found out that our unborn child has a 95% chance of having campomelic dysplasia and we are doing our best to find all the information out about this that we can but we are also looking for people to talk to who have been through this and can give us some advice/what to expect for sure. If you are interested please contact me at sshaf@hotmail.com. I wouldn't normally just put my email right out there but I am so lost and really are looking for help and I am not sure what other way to let you know how to contact me. Please and thank you for all your help/consideration!<br />SaraAnonymoushttps://www.blogger.com/profile/05611750162032559389noreply@blogger.com